A Go Fund Me page has been set up for Kason Tubb. Kason was born with a terminal non curable form of dwarfism called Rhizomelic Chondrodysplasia Punctata “RCDP.” Less than 100 kids worldwide have this condition. Kason has been chosen from Make-a-Wish to fulfill a wish, but they don’t do construction. So if the Tubb family can get his add-on room built then Make-a-Wish will come in an paint and decorate it up for him.
Link to donate: https://www.gofundme.com/5jk0om0
Below are the details from the Go Fund Me Page:
We are trying to raise money to build our special needs child Kason his own room/bath! Right now his room is an “office” in our home. It’s super tiny and a fire hazard waiting to happen. You can barely turn around in there it’s so cramped up. Only three power plugs and no telling how many power supply strips we have or extension cords to run all his equipment. We are looking to expand his room outward to have a bigger space where we can all enjoy with him. Right now the whole family can’t sit in his room and watch a movie with him or more than one person in there with him period. Kason was recently approved for make a wish but they don’t do construction. Said if we can get the add on built then they could come in and finish it out like paint, decor and such… If you can’t donate money. Maybe you can donate supplies. Wood, nails, power supply lines, power outlets ANYTHING.. Or heck even you may want to volunteer to come help us build it!! Kason has a terminal form of dwarfism called rhizomelic chondrodysplasia punctata. Less than 100 kids world wide with this disorder. He can’t walk talk or anything a normal 4 year old child should be doing. He is on continuous feeds via g tube and on oxygen continuously to. We should have the drawn up plans and quote this week and I’ll post that when I get it! Thank you for your time! God bless Www.facebook.com/prayforkason